Mary Rose Blackduck sought medical attention when she began experiencing balance issues while walking. Despite multiple visits to doctors in Yellowknife, where she reported muscle spasms, cramps, weakness, and a foot fracture, she was initially misdiagnosed and prescribed sleeping pills. Frustrated by the lack of proper diagnosis in her hometown, Blackduck traveled to the University of Alberta Hospital, where she was diagnosed with amyotrophic lateral sclerosis (ALS), commonly known as Lou Gehrig’s disease.
ALS is a devastating neurological condition that results in muscle deterioration, with a life expectancy of two to five years post-diagnosis. The Northwest Territories Health and Social Services Authority (NTHSSA) acknowledged the challenges in diagnosing ALS due to the absence of definitive tests and varying early symptoms. Currently, the N.W.T. lacks a full-time neurologist, making it difficult to diagnose such conditions in the region.
Blackduck, a former broadcaster, is now coming to terms with her diagnosis and the inevitable progression of the disease. She anticipates the loss of vital functions such as speech and mobility, requiring assistance for basic activities like eating. Despite the grim prognosis, she is grateful for the clarity on her condition and is contemplating relocating to Edmonton for better support services, as the N.W.T. lacks an ALS-specific support group.
While uncertain about reimbursement for her medical expenses, Blackduck is focused on organizing her affairs and preparing for the challenging road ahead. She is determined to make the most of her remaining time and seek out available resources to cope with the physical and emotional toll of living with ALS.