Jesy Nelson has shared an update on her determination to support her twin daughters following a heartbreaking health diagnosis. The former Little Mix member revealed on January 4 that her premature twin girls, born in May 2025, were diagnosed with Spinal Muscular Atrophy (SMA), a rare condition that progressively weakens muscles and could impact their ability to walk.
Taking to Instagram, Jesy expressed her gratitude to fans for their overwhelming support during this challenging time. She acknowledged the outpouring of kindness and solidarity not only for herself but also for other families facing similar diagnoses, emphasizing the importance of the support received from the SMA community.
In her message, Jesy announced her initiative to petition for including SMA in newborn screening and testing, underscoring her commitment to advocating for greater awareness and early detection of such conditions. She affirmed her determination to fight for this cause and promised to keep her followers updated on the progress.
Additionally, Jesy disclosed her upcoming appearance on This Morning on January 7 to shed light on her family’s journey, emphasizing that the road ahead would be long but expressing her unwavering resolve to navigate it.
Jesy and her partner Zion Foster welcomed their daughters, Ocean Jade and Story Monroe Nelson-Foster, earlier this year. Concerns arose when Jesy noticed developmental delays in her daughters, prompting medical consultations that led to the diagnosis of SMA Type 1.
SMA manifests as muscle weakness, breathing difficulties, swallowing challenges, and delayed motor development. Jesy described assuming the role of a caregiver, administering specialized care including the use of breathing apparatus for her daughters, a task she never anticipated having to undertake.
Despite initial reassurances from healthcare professionals, Jesy recounted the journey of appointments and assessments culminating in the devastating diagnosis of SMA type one for her daughters. She stressed the urgency of timely treatment to mitigate the disease’s progression and expressed gratitude for the medical interventions that have been critical in preserving her daughters’ lives.
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