Jesy Nelson expressed her determination to fight for her twin daughters after disclosing their heartbreaking diagnosis of SMA Type 1. The 34-year-old former Little Mix star, who welcomed Ocean and Story in May, received overwhelming support following the news of their condition. SMA Type 1 is a rare genetic disorder that leads to muscle weakness and can be life-threatening if not detected early.
In response to the diagnosis, Jesy shared her intention to launch a petition advocating for newborns to undergo screening for spinal muscular atrophy using a heel prick test. Early detection of SMA significantly improves outcomes, potentially saving lives. While the NHS in Scotland plans to include SMA screening in 2026, NHS England has not announced similar measures.
Jesy, in an Instagram video, expressed gratitude for the support received and emphasized her determination to push for SMA screening in newborns. She highlighted the importance of early diagnosis and treatment to combat the effects of the disease. The singer also revealed her upcoming appearance on This Morning to discuss her experience with SMA Type 1 and raise awareness about the condition.
In a previous post, Jesy shared the challenges faced in diagnosing her twins, emphasizing the need for awareness of SMA symptoms. Despite initial dismissal of concerns by medical professionals, Jesy persevered until her daughters were properly diagnosed and treated.
By leveraging her platform, Jesy aims to educate others about the warning signs of SMA and advocate for improved screening protocols for newborns. Her efforts reflect a commitment to raising awareness and supporting families affected by this debilitating condition.